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Media The following information about essential tremor (ET) and the International Essential Tremor Foundation (IETF) is provided for the media and other interested parties. For more information, please contact the IETF at 913.341.3880 or email Info@essentialtremor.org.
Media Kit - Information about ET, the IETF, and the Executive Board members. Radio Spots: Play or Save ET and the IETF
IETF at NINDS Nonprofit Forum Catherine Rice, Executive Director of the IETF, and Dr. Kelly Lyons, President of the IETF Board of Directors, attended the National Institute of Neurological Disorders and Stroke (NINDS) 2011 Nonprofit Forum "Partnering to Advance Therapeutics for Neurological Disorders." Read a summary of the forum activities. IETF - ET Report from Washington, D.C.
July 11, 2011 Update June 30, 2011 Tom Bruderle, the Washington, D.C. liaison for the International Essential Tremor Foundation, has been active during spring-early summer 2011 by raising awareness of ET among our nation’s elected leaders and political contacts in the House of Representatives. Bruderle has been in contact with the legislative aides and directors for multiple Representatives on the heels of the March 30, 2011 congressional reception hosted by the IETF in D.C. Read more. IETF funds two research projects in 2009
The IETF is active in funding basic ET research with the goal of finding a cure. See what studies are being funded during 2009. Marathoner runs to raise awareness about ET
Stephen Remillard has suffered from misconceptions and misunderstandings about his ET, but now he runs to demonstrate that ET cannot hold him down. Watch DBS surgery live from the operating room on NBC's Today Show - 2/3/2010 |
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International Essential Tremor Foundation. All Rights Reserved P.O. Box 14005, Lenexa, Kansas 66285-4005 Local: 913.341.3880 | Fax: 913.341.1296 | Toll-free: 888.387.3667 Email us at: info@essentialtremor.org |
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